Living (and homeschooling) with the "A" Word...

Homeschooling perks!

2012-02-12T13:29:00.000-05:00

Hi everyone. I am busy today trying to pull my lessons together for next week. I guess it would be easier to do a pre-made curriculum, but I hate the idea of being tied down to workbooks for everything. We do use a workbook for math, but that's it. I think we will do a unit on winter this week, and "A" is still reading from his primer. We have a few letter blends to learn this week in reading.

Last week went well, we actually got ahead in reading, I am glad for that! I got a call last week from the UVA medical center asking if they could see "A" earlier due to a cancellation. I said yes, then went into a frenzy trying to pull together medical records. The trip was about four hours one way, so that of course took a whole day and then we needed the next day for some much needed rest!

We will have to catch up a little with math this week, but do I feel guilty? No, that is the joy of homeschooling! We are planning a visit to the lovely Pigeon Forge area for a stay at a indoor water park in the near future, I am sure I can work something educational into that, there are some wonderful educational opportunities in Pigeon Forge!

I am finding many "perks" to homeschooling! We can sleep in a extra hour and still get our lessons done by lunch! We can take awesome field trips to water parks! I don't have to feel guilty any more about missing school for medical appointments, and everything can be turned into a opportunity for learning!

Another Magnificent Monday!

2012-02-06T16:26:00.000-05:00

It is so unusual to be excited about Mondays, but I am now. Things have changed so much since I started homeschooling "A", even baby brother seems happier, I think a lot of stress and anxiety has been removed from our household. "A" wakes up ready to do his school work, he seems like he is having fun.
Two weeks ago I could barely get him to put three sounds together to make a word and today he read word's like John, look, and that. The reading curriculum we are using seems to be working! So far math is going good, I started him at the beginning of the Kindergarten Horizons math workbook, it is a lot of review for him but he is flying through it, doing several lessons a day. I am sure it will slow down a little when we get into some of the harder concepts. We ended our lessons today with our unit study, "Rocking Robots" . Alex is enjoying learning about all the things robots can do, especially the fact that they have been to Mars! In today's unit study we also talked about the Solar system. We have had a great start to the week and we are both pleased!

And the journey begins....

2012-02-04T14:57:00.001-05:00

We have been homeschooling for about two weeks now. Things are starting to fall into place. We took it slow for the first couple of weeks, so we could both get used to the change. Homeschooling is pretty awesome. I am surprised that A does his lessons so well with minimum fuss. We have been concentrating mainly on reading and math for the past two weeks, and we have read a few books from the library for science and history, we have learned about George Washington in history and about shadows in science. We also started reading "Moby Dick".

During the past two weeks we have worked on reading skills and phonics, and we have reviewed in math. We enjoyed morning story time at our local library last Tuesday and we were able to meet a local home school family for lunch one day!

We got our new Horizons math book and the Pecci reading series in the mail last week so we are ready to take off. I am waiting on science, social studies, and bible. I have also decided to do some unit studies. I downloaded a few from Unit Studies by Amanda Bennet and I let A choose which one he wants to do next week! He chose a unit about Robots! I am looking forward to a fun week next week, one full of learning!

My little Mr. Smarty pants!

Computer time!

Finished with lessons and playing his Wii...

A new journey for "A" and myself...

2012-01-26T12:41:00.000-05:00

I am disappointed that things were not working out at school like I thought they would. I had great hopes when "A" started school. So we are now entering a new journey, I have decided to home-school "A". I am nervous about this. I know I have the education necessary to do this, but this is a huge responsibility. We started today, we are pretty much winging it right now as we wait on some important materials to arrive in the mail. Here is how our morning went; wake up, meltdown, breakfast and a story, math (which I have discovered he is a little confused about, we are going to have to back up and review), reading, and a huge meltdown caused by a mistake Alex made on a worksheet. He expects things to be perfect and it is hard to make him understand that it is okay to make a mistake. We are finished for the day now, I am trying to gradually add a little more every day and hope this decreases meltdowns. I think once we get our new routine things will really start looking up. We are going to take a trip to the library to find some books for Science and Social Studies and I hope to start those subjects next week, I plan on making them fun, after all, this is Kindergarten!

"Mommy I want to be a Fry Cook........"

2012-01-04T21:28:00.000-05:00

The moment she finds out a baby is on the way every mother starts dreaming. The moment I knew I was having a boy I imagined a lot of things. I saw him in Kindergarten, the teachers pet, every one's best friend. I saw him as a football star, the homecoming king.....Of course as all parents know dreams are dreams, and reality is often what we face. But, does that kill our dreams? No, I still dream for my child, I always will.

The other day he came to me and said "mommy, when I grow up can I be a fry cook"? Well, I sat there for a moment and looked at this intelligent, quirky, little child, with his red hair and those rosy red cheeks. I know now he will probably not become a football star, he could, but I have been told that he probably wouldn't be crazy about competitive sports. Well, I changed the dream a little. If not a football star what is stopping him from being a musician, or he can't he excel in Martial Arts? I know he isn't going to be a social butterfly, he may not even want to go to his prom and that is okay. He loves computers, maybe he'll be writing programs by the time he is a teenager, maybe he'll invent something!

But....a Fry Cook? Hmmmmmmmmmm.........

So I gave my little man a hug and said, "Well, I'll tell you what. The thing mommy wants for your the most is for you to be happy, so if you grow up and decide that being a fry cook makes you happy, then you go right ahead"! I'll be just as proud of my fry cook as I would have been of my engineer, or my musician! Because I want him to be happy in whatever he decides to do! That is my prayer for him, a long, happy, life!

I hope each of you had a very Merry Christmas and a Blessed New Year!

A letter of great importance, please read...

2011-12-23T09:43:00.001-05:00

Dear School Personnel, Community Members, Teachers, Parents and Neighbors

A wonderful blog post I found Posted by Marianne , re-posted here with permission, original post can be found on the blog The Life Unexpected.

To Whom it May Concern,

I am the parent of a special needs child. I was overwhelmed, confused, heart broken and struggling to unravel the complexities before me.

Please do not pass judgement of me without knowing why I did not attend the school PTA breakfasts or community picnics. Please take a few minutes to understand why I did not take you up on your offer to have lunch or grab a cup of coffee. Although we see each other in the supermarket or at school functions, I don’t think you really ever knew me, actually, I can guarantee that you did not know me because just as my child was different, so was I.

I was in survival mode to keep my family in tact and to give my child the best quality of life possible.

I was presented with parental decisions that have torn me apart and kept me up more nights than I can possibly remember.

I had spent most days of the week at therapy and doctors appointments and most nights up researching treatments and medication options.

I was forced into isolation at times due to the stigma and misconceptions that are epidemic in our society.

I became proficient at prioritizing my life and learning to let the little things go, to look at others with compassion instead of tabloid material and to turn a blind eye to the stares or ignorant comments.

I did the best I could.

I survived.

I am one of the lucky ones, my child has blossomed and has exceeded all our expectations.

I have now become strong, I have become confident and I have become a fierce advocate for parents of special needs children. The growth did not come without much pain and many tears but it came.

So I ask you, please

The next time you see a parent struggling with a raging child, a child terrified to go into school, a child making odd movements or sounds, a child that seems to be in a world of their own… .Be kind. Give a smile of recognition for what that parent is going through. Ask if there is anything you can do to help, give them a pat on the hand or offer for them to go ahead of you on line.

The next time you have a birthday party for your child remember that their child has a hard time with a lot of sensory issues and social situations. Please send their child that invitation and know that more times than not they will not be able to attend but appreciate being included. Understand that in order for their child to go to the party they may need to stay for a little while and please make them feel welcome. When they let you know that their child cannot make the party consider inviting that child for a one on one playdate or an outing at the park.

The next time you are grading homework papers please understand that their child struggles, some with learning disabilities others with the exhaustion of their disorders or the obsession with perfectionism. The Perfectionism is not necessarily to have the answers right but to have it “feel” right for them. They have spent hours doing what most can do in ten minutes. A paper returned with red circles and comments only hurts a child’s self esteem and causes school anxiety. Please understand that when they see the school come up on their caller ID their hearts sink, remember to tell them about all the gains their children are making as well as their deficits. Take a minute before that call and know that they appreciate all you do and want a collaborative relationship in their child’s education.

The next time you are in the teachers lounge, please do not discuss their child. Please do not make negative comments about their parenting or their child’s behavior, it gets back to them and it gets back to other parents in their community.

The next time you pass the cafeteria and see their child sitting alone please consider inviting that child to eat lunch in your classroom and be your helper that period. Consider working with a guidance counselor to set up a lunch buddy group in a different area.

The next time they are at the CSE meeting planning their chid’s IEP know that they are educated, informed and confident knowing special education law. Know that they have found the courage to stand up to conformity and will explore every option to give their child the differentiated educated that will show their gifts and not just their disabilities. Understand that educating a child with special needs is one of the most difficult tasks a parent can face, know that the last thing they want is an adversarial relationship. Please show them the same respect they show you.

The next time you are creating an educational plan please take into consideration that their child may have specific interests or obsessions. Foster those interests, instead of taking away that art class for a resource class consider adding an art class instead. Think outside the box, these parents do.

The next time you see that child in a wheelchair unable to speak or control their movements, don’t stare, don’t look away, say hello. Do not assume that because this child is nonverbal that they are not intelligent or do not understand the awkwardness that you feel. Take a moment out of your day to show kindness, support a parent enduring incredible pain and just give them a smile.

The next time your child comes home telling you how Johnny or Susie is so weird, take the time to teach about differences. Take the time to talk about compassion, acceptance and special needs. Please remember that your child learns from you. Be a role model, mirror respect and discourage gossip.

The next time you hear a comment about how out of style these kids are, educate about tactile sensitivities and the fact that these kids cannot tolerate many textures and fits. Imagine what it would feel like to have sandpaper in your stilettos or tight elastic holding on your tie.

The next time you see an out of control child do not assume it is bad parenting. Understand that many of these disorders have an organic basis, are biological and are real illnesses. When you hear the words mental illness, take out the “mental” and remember ”illness”.

Know that it is this generation that can stomp the stigma and create a world of acceptance.

The next time other parents are talking about “Those Kids” be our heroes, stand up for us.

The next time you see a special needs child know they are not just special in their needs but in their brilliance as well.

Take the time to meet our children. Take the time to know us.

A afternoon with my little man!

2011-11-12T15:27:00.000-05:00

Growing up so fast!

Silly boy!

He loves his dog!

Drama, Drama, Drama, and ALWAYS tape your IEP meetings!

2011-10-15T11:32:00.000-04:00

Well we finally had a meeting at school concerning "A" being suspended. It amazed me that some in attendance felt the meeting was unnecessary, considering how high my son is academically. I wonder how many of those people would have just stood by while their Kindergartner was suspended, then I hear that the "hitting" incident was most likely accidental? Wow! Personally they don't realize how nice I am being about it. I have had several advocates advise me that I should file state complaints and/or a complaint with VOPA. I do know that I will be keeping a very close eye on things from now on.

Now lets move on to happier things. In spite of all the drama (and that is what it really is) "A" is doing well in school. Academically he is kind of brilliant if I have to say so myself, but this is not a new revelation to me, I knew this when he started speaking well above average when he wasn't even a year old! I knew this when he was memorizing songs and singing them at 15 months old, he is a smart kid!

I am being told that the sensory issues that are so rampant in Alex's life and even noted at recent OT and PT evaluations are non existent at school. Personally I have my own views on that and I won't go into that here at this time.

Alex also is quite the social butterfly at school according to the powers that be, great for a child with Asperger's. I am thankful he gets along with the other children (when he isn't being suspended for "accidentally" hitting them). But, I also know what he comes home and tells me, I don't think what the teachers imagine they are seeing and how he perceives the situation are the same thing at all. But, you can't always argue with the "professionals" after all who am I? I am just his mom, who also just happens to have a degree in Education and several Masters level courses toward a degree in Special Education, what do I know about any of it?

After giving the proper 24 hours notice I taped the IEP meeting. Best decision ever, I will be taping all of our IEP meetings from now on! As I listened to the tape I was amazed at how much I forgot, and also at some of the things I heard! I would advise all parents to consider taping IEP meetings. Check your state and county regulations!

2011-10-04T13:52:00.003-04:00

Getting Sleepy!

It's been a long time. I don't know where to start. We ended school last year with some measure of success. Meaning we were having more good days than bad and "A" was actually learning something. We started Kindergarten the same way, we had weeks of "good" days, "A" is learning, learning, learning, I am not surprised, he is a extremely intelligent child. What bothers me is when the learning stops, when a child who was at one time deemed "to intelligent for a IEP" ( I kid you not, can you believe someone would say that), well when this child starts struggling again, when the worksheets are sent home not completed on a almost daily basis. When he tells me: "I hate school", "I'm tired of doing the same thing every day", "I hate singing songs, I hate worksheets, worksheets, worksheets", and to top it all.... when my five year old is suspended for behavior that is a direct manifestation of his disability, not new behavior, but behavior that has been going on since Pre-k. All of those things bother me.

I have been told by at least one professional that the only way my child would reach his full potential is to remove him from public school, I have been told by yet another professional that I would do him a great disservice if I pull him from public school. I just know I am tired.....

I'm tired of having to fight every day for the education my child deserves. I'm tired of notes from teachers saying that "he is acting like a regular Kindergarten child" one week, and then a suspension two weeks later. I am tired of people not doing their jobs, not following his IEP, not trying to make the classroom environment conducive for learning.

You can't put all children into a pot and expect them to learn the same way, you can't expect them to be happy, you can't expect them to conform. I have a education degree, I am not the dumb "crazy" mom they suppose me to be....I studied some Psychology as well. I know all about Gardner's Theory of multiple intelligences.... I know that even "typical" children learn differently, it is not a one size fits all model. So what I really have to wonder is...How do ANY of our children ever learn anything?

Yes I guess I am in a bad mood. So I am going to find something to be thankful for. Sometimes it is hard to be thankful, I mean I ask myself on a daily basis, why me, why my children? I know things could be a lot worse though. So here are a few things I am thankful for:

I am thankful for my children, I am thankful their little quirks and how they make life so interesting, I really can't imagine them not being just who they are.

I am thankful for the many wonderful people God has put in my life, the people I would have never met had it not been for our situation. People who are a blessing in many ways, some of them don't even know it.

I am thankful that things aren't worse, I am thankful to be able to hear my children's sweet voices, I am thankful every time one of them climbs on my lap and says "I love you".

I am thankful to be able to hold them in my arms, I know all to well what empty arms feel like.

I am thankful to God, though I know at times I feel so alone, God is always there, even in the times that it feels he is so far away, there is always that small whisper.

"Let your conversation be without covetousness; and be content with such things as ye have: for he hath said, I will never leave thee, nor forsake thee" Hebrews 13:5.

"A" with his friend!

The never ending fight...

2011-07-27T19:18:00.000-04:00

I promised in one of my other posts that I would talk about fighting. Having two children with disabilities I can choose to do one of two things, I can either sit back and let everyone else make decisions for my children. I can let them decide how much therapy they get, what services are offered (if any), etc.

Or...... I can fight for what my children deserve, I can fight for their rights to live just as full a life as the "typical" child sitting next to them.

Fighting isn't easy, sometimes it seems like you never win, that no matter how hard you push, how many advocates you talk to, how many laws you know, well that you never get anywhere. I remember a saying from my son's NICU days, one baby step forward and three big steps back. That is often the way it goes in the world of special needs. It seems like I get one small tiny victory and then something (or someone) else comes along to say, hey I'm still boss, guess I showed you. What can I do but keep going. I know I am making more enemies than friends, though I don't intend for it to be that way. I can't understand how a parent who fights for her children's rights, who tries to see that they have everything they need to succeed, how is it that this parent is often considered a nuisance, a pain in the neck, often "crazy".

I have actually seen Special Education Teachers blog about "crazy" parents, not that I'm saying there aren't some crazy ones out there. Just because a parent is fighting for what they believe in, does not make them crazy! I could put up examples of what I have endured so far in trying to get the services my children deserve, but I won't, if I do I am not much better than those teachers who slander parents on the Internet. A parent fighting for their child does not mean they are crazy! It means they are a warrior! We as parents need to stand together for our children, maybe then we can begin to win a few battles, maybe even a war! Are you a warrior for your child???

Two of my boy's!

Weekend Blog Hop

2011-07-23T11:22:00.000-04:00

Join me at Lucas's Journey with SPD for some blog hopping fun! I hope to gain some followers for my blog and some new friends, we can never have to many friends in the world of Autism!

Happy Birthday!

2011-05-22T12:43:00.000-04:00

A. is five! It is hard to believe that it has been five years since the nurse put that little red headed baby in my arms. What a happy day that was. After my oldest son was born and years were spent trying to conceive, it was a wonderful surprise to find out my A was on the way! We celebrated with his brother who also had a recent birthday at a birthday bash at Fun Expedition! Here are some photo's from the day!

The Birthday Boy!

Opening presents!

Life of the atypical parent....

2011-03-30T17:03:00.005-04:00

Hi everyone, it's been a while. I am feeling out of sorts and have been that way for a while. There has been a lot going on with both of my children and I feel like I am being pulled in a million different directions. For some reason this is just a difficult time of year in many ways. There are so many days that I feel like I could just crawl in bed and stay there, but I don't have that option. Being a parent with special needs children is difficult any way you look at it. I have had the honor to meet so many great parents, parents who will do whatever it takes to make sure their kids are getting the things they need. But, it is overwhelming and you often feel like no one could possibly appreciate what you do. So do you want to know what it's like being a parent to children with special needs? Well, here is what it's like for me anyway!
1. Get up and drag yourself out of bed, rush to make sure that everyone gets where they need to be on time, even when one child decides to take all of his clothes off at the last minute and the other is refusing to leave the house without his "bad guy" transformer and at least three Superheroes and you can't find any of them....
2. Finally get one child on the bus and get the other one in the car, get stuck in the last minute rush, try to park in disabled parking spot only to find the ONLY two spots taken by someone who DOES NOT have a disabled tag or decal, and have to get tardy slip for being one tenth of a second late.
3. On the way out the door be stopped by someone (therapist, principal, other school personnel), telling you they need to discuss something with you.
4. Come home, get online to try to research the best possible therapy for your child's situation, find the greatest thing, google it and try to find therapist in your particular area, no luck...
5. Call doctor thinking she may be able to tell you something Google didn't..... find out, yes that is available, if you want to drive two hours.
6. Grab something unhealthy for lunch and then call all of the people who are expecting you to call them back....
7. Talk on the phone for what seems like hours...
8. Glance at the clock and realize that it is almost time to go pick your child up, rush out, stop by post office or grocery store as fast as you can.
9.Fight the after school traffic, don't even bother trying for disabled parking as they are all blocked anyway....
10. Pick up child, talk to teacher, rush home in time to get other child off of bus..... OR
11.Realize that child has 4:00 appointment in location that is 30 minutes away, call someone and beg them to get other child off bus for you.
12.Rush child to appointment arriving 15 minutes late, but that's okay, you are going to have to wait two hours before he can be seen anyway, getting home around 7:00.
13. Meals, baths, bed........

I guess I'm trying to be a little funny, but that is pretty close to the truth! No I don't want pity, I just want someone to recognize that what I do is difficult. No, I don't lay at home every day in front of the television. There are about a million more things I could add in there, and it varies each day. Sometimes I have to fit a appointment in for myself or for my oldest son as well. Some days I have meetings that I like to go to, some days the phone rings non-stop. It varies!! God bless all the parents who are out there quietly taking care of their children and fighting for them in a million different ways! We'll go into the fighting part in another blog! They are worth every minute! :)

My prayer for my children...

2011-02-14T17:50:00.003-05:00

Please bless my children, keep them safe,
give them health and happiness.
Give the other children understanding,
and give them a few true friends.
Give their teachers wisdom,
and let them be kind.
Heal them lord,
but if that is not in your will;
Give me the strength and patience I need,
Let me be their advocate.
Help me to stand up to those who think they know more about my children,
when they really don't have a clue.
Most of all dear Lord,
let them realize how special they are.
Special not because of their disabilities,
but because you created them,
with a purpose.
Let them realize their gifts,
but most of all;
Give them happiness!

2011-01-29T14:58:00.000-05:00

Join the Blog Hop Fun!!

Frustration...

2010-12-22T13:02:00.003-05:00

This is not going to be a happy post. I am just very frustrated, and sometimes I am not even sure what I am frustrated with. It seems like nothing I can do is right, in my eyes or anyone's for that matter. I feel like I should be doing more for my kids, I feel guilty if I try to take a break. I even feel guilty for writing on this blog while they watch "Scooby Doo". It doesn't help to see posts on facebook and other places where parents put themselves out as being the "Mother of the Year". I guess with typically developing and special needs kids you will always have those parents who make you feel like you could do more. I have been told by a family member that I don't do enough, I should be in the floor with my children their every waking hour, maybe I should, but then I am confused when the same family member tells me that I spend "to much" time trying to get services for my kids, and that I shouldn't spend so much time thinking about their disabilities, or talking about them.

I just want to say.....I feel bad enough, there are things I want for my kids that I am just not able to get. A lot of things bother me right now that probably shouldn't, I am easily offended by things that probably shouldn't offend me.

I have had a lot happen in my life over the past 3 years. I don't really need to go into all of that, but I am going through a grieving process, multiple grieving processes actually. Maybe I am stuck, who knows, maybe I do need counseling. But, having people constantly tell me what I am doing is wrong, making me feel guilty for trying to take the occasional break, well that isn't making me feel any better.

I love my friends and family, I want a good relationship, but sometimes I feel so confused.

I know I am not the only mother who blogs about her kids, I know I am not the only mother who writes things on facebook to try to raise awareness. So, why are people trying to make me feel like a bad person, why do people act like I should be ashamed of my son's Autism diagnosis and hide it.

I am very proud of my boy, the fact that he is on the spectrum does not make me any less proud. Actually I feel more joy at his achievements than I would if he were a typically developing child.

Finally, my biggest pet peeve....STOP telling me that "A" isn't "autistic enough" that because he is so high functioning and he is so smart that I should let people think everything is okay, that he is some sort of child prodigy. He is smart, but there are issues, that is why I take him to doctor's and multiple therapy's. That is why I spend my nights online looking for the latest in treatments, even special diets. I tell people to raise awareness, autism isn't always what it appears to be, it isn't always "rain man" or a child in the corner banging his head into the wall. I suspect and I have seen that there are many children (and adults) out there, smart children, who are going undiagnosed. Children who struggle with social skills, smart people who lock them selves away, who have to be home schooled or who are miserable in regular school, adults who have a hard time holding down a job, who spend their lives on their computers because they don't have the social skills to go out into the world. Young children with whom intervention may make a world of difference in their lives as adolescents and adults.

So if you don't like the way I do things, then don't try to make me feel bad, you don't have to read my blog or be my friend on facebook. I struggle every day. I will do what I have to do, if you don't agree with my methods then I am sorry. Especially don't criticise if you have never dealt with what I am dealing with.....

Here is some information about families dealing with Autism, and what YOU can do to help.

Autism and Imagination...

2010-12-16T19:15:00.003-05:00

I have been told by many professionals that because "A" has autism he can't use his imagination. I have to disagree! At least this don't seem to be the case with "A".

Just a little while ago he was sitting on the table, you probably think it is strange that I let my son sit in the middle of the table. We do a lot of strange, but fun things at my house! Anyway, he was sitting on the table, the table was his ship and he was a viking. He was spinning a big tale, sitting there with his viking hat on. He was fighting pirates and dragons. He had to get in a airplane to get off the ship, because "mommy I can't get off in the water." If that isn't imagination what is it! Maybe it is because he is "high functioning?"

I love this quirky, sweet, creative moments! I think about them when I am dealing with a big meltdown, and we have been having quite of few of those lately. Thanks to medication issues and school being out for almost two weeks due to snow! Even though "A" likes to be home, he misses his routine and schedule!

A "IEP" for Christmas...

2010-12-09T23:15:00.005-05:00

I am sorry I've not kept up with this blog. I will do better. Tomorrow we have our first IEP meeting. I'm nervous, but excited that "A" will be receiving some intervention, AT SCHOOL! Last year at this time I was fighting for that, remember this poem?

We had Christmas pictures made, "A" did very well. Usually sitting for pictures is difficult for him, but he seemed to enjoy it this time, we had a really good photographer!

A big Pet Peave of mine...sorry if it offends!

2010-11-09T10:09:00.004-05:00

I don't know if this bothers anyone else as much as it does me, and maybe it shouldn't even bother me. I am talking about those annoying parents who love to tell the world what geniuses their children are. Okay, I know that parents are going to brag about their children, it is normal. I do it too.

I am talking about those parents who are convinced their child is smarter than everyone and they want everyone to know it. They post about it on facebook, and twitter, they tell everyone they meet about their child's "poopie in the potty, and she's only 6 months old". Their baby slept through the night, walked, talked, and mastered quantum physics before any other child. They compete with everyone, they compete at daycare, church, school, and the PTO meeting.

Yes, this annoys me. As the mother with two special needs children this annoys me a lot. It is okay to be proud of your child, but don't be pushy! Do we really need a play by play of your child's day? I'm sure someone is going to say I'm jealous, that I wish my kid was as smart as their kid?

Well, no I'm not. I am very proud of my children, I would not trade them for a million of yours. A. is amazing, he is so smart, he works hard and every accomplishment is hard earned! The same goes for his brother Elijah, that little guy is amazing. No, he may not be able to walk yet, he has a limited vocabulary and he struggles. But, I can guarantee, he has accomplished more in his short life then the most accomplished, scientific, artistic, verbal, potty trained two year old!

Now for a little "brag" of my own..... some of the most intelligent people who ever lived had autism! Don't believe me? Google it!

The Invisible Disability

2010-11-05T18:04:00.002-04:00

I never really thought about it this way until I read another bloggers buzz on seededbuzz. She speaks of people telling her that her son with autism "looks normal." This is so true, especially concerning my son who is high functioning. With little brother Elijah who has cerebral palsy it is easy for others to tell he has a disability, he can't walk at two and a half, and he wears orthotics. With Alex it isn't as easy, and sometimes it is hard to convince people that he even has autism.

When a person sees him in the store having a meltdown, they look at him as being out of control and they look at me as being a bad mother. What they don't understand is yes he has autism. Yes, he may be high functioning but he still has difficulties. He has a hard time with social interactions, and he has a hard time concentrating especially when his senses are overwhelmed.

He doesn't think like we do, I would love to know half of the things that go on in that amazing mind! He has a difficult time telling me how he feels, and why he feels that way. I could go on and on. I hope that someday people are a little more sensitive to these children. If you see a child having a tantrum don't just assume that the child is naughty, and the result of bad parenting.

No one can understand what a parent is going through so stop being so judgemental. Instead find a way to help. Don't stand there and stare, roll your eyes, whisper, or smirk! It doesn't help the situation, it just makes the parent feel upset, embarrassed, or angry.
It isn't logical to expect a parent to keep their child with autism home all of the time just to make the so called "normal" world more comfortable. Our kids are learning important skills, parents are learning too. If I learn that a certain situation sets my child off, then I know to be more aware next time.

Yes, my son has autism! He is cute, smart, and can be very sweet. He also thinks differently, he reacts differently, but he is perfect in my eyes! I will do everything possible to see him succeed in life! Just know that!

About sensory processing...

2010-10-29T11:04:00.004-04:00

Good morning, wow it has been a difficult one at my house. Not only do we have about $10,000 worth of wind damage to deal with, but our own little "hurricane" "A" blew through this morning. Talk about stormy, he was extremely irritable. From the moment he woke up until I walked him into the classroom. We had a MAJOR meltdown this morning. It was one of the most serious I have seen so far! I'm not sure what is making "A" so upset. Maybe it is the change in weather. Alex has sensory processing disorder this is common with children with autism but can also occur with other disorders or even by itself.

Children with SPD may be hypersensitive to touch, as infants these kids often do not like to be held or cuddled. They may be fussy during diaper changes and hate having their hair washed or brushed, they wipe kisses away, and they prefer being hugged. They dislike messy play, certain textures and they may hate wearing clothes, dislike the seams in their socks and are picky eaters. A's baby brother Elijah is like this. He was born extremely early he was not held often during his early months and when he was held it was often to receive uncomfortable or painful treatments.

Children with SPD may also be hypo sensitive to touch. These kids are considered under responsive they

crave touch, needs to touch everything and everyone

are not aware of being touched or bumped unless they are bumped with extreme force or intensity

are not bothered by injuries, like cuts and bruises

may not be aware that hands or face are dirty or feel his/her nose running

may be self-abusive; pinching, biting, or banging his own head

mouths objects excessively

frequently hurts other children or pets while playing

repeatedly touches surfaces or objects that are soothing (i.e., blanket)

seeks out surfaces and textures that provide strong tactile feedback

thoroughly enjoys and seeks out messy play

craves vibrating or strong sensory input

has a preference and craving for excessively spicy, sweet, sour, or salty foods

"A" seems to be more of a hypo sensitive kid, but has some hypersensitive tendencies as well. One of the things A does is play with my bangs. When he is nervous or sleepy he wants my hair, it doesn't matter where we are at, he will ask for my hair. A is also a kid that likes to wrestle, jump, and pretty much bounce off of things and people! One treatment A has been prescribed by his OT is a Sensory Diet with Heavy work Activities. Some of these activities are:

Whole body actions involving pushing, pulling, lifting, playing, and moving

Oral actions such as chewing, sucking, and blowing

Use of hands for squeezing, pinching, or "fidgeting"

I have found that allowing A a small stretchy toy to fidget improves his concentration. My main concern is getting A the supports at school for his sensory needs, but that is a whole other story, and I promise to write about it soon, we have a eligibility meeting next week. I am sure it is not going to go well. So I am getting prepared!

There is so much more to understand about sensory processing, I just wrote about the two that seem to pertain to A. the most. To learn about the other aspects of SPD go here

A great book to read about Sensory Processing is "The Out -of- Sync Child" by Carol Stock Kranowitz. It is a great book for parents and teachers alike!

Wordish Wednesday

2010-10-27T11:50:00.003-04:00

"A" really enjoys Lego's he will spend hours on them!

A therapy session.

http://www.autismspeaks.org

What is the difference between High Fuctioning Autism, Aspergers, and classic Autism?

2010-10-26T12:05:00.004-04:00

My son has a diagnoses of Autism, his autism is high functioning, possibly Aspergers. Autism is actually a whole spectrum...a child with high functioning autism can be described in the following way"In the case of high functioning autism, the afflicted person will have high IQ and is regarded as genius some times, but they lack in understanding non-verbal communication and social skills." These kids are often called "little professors because of their almost adult way of speaking. In many ways "A" seems like a normal four year old, it is actually hard for people to believe he has autism. "A" prefers the company of adults, he doesn't like to make eye contact, he says that eye contact "makes him embarrassed". He likes to be around other children his age, but he has a difficult time approaching them. He prefers to play alone or with his 15 year old brother. "A" can spend hours building "structures" out of Lego's. Right now he is building houses.

"A" does not get it when someone is joking, he takes everything very literally. Pet names confuse him, and figures of speech are frustrating for him. If I get mad at the dog and say "I am going to kill her" really believes I am going to kill the dog. "A" has a hard time reading emotions and is constantly asking if someone is happy, sad, etc.

"A" is very smart and his IQ is high, but he has trouble remembering his colors. He has a hard time sitting still because his sensory system is so overwhelmed. Sensory problems are common with autism, but that is a whole other issue, I will post more on sensory later!

Here are some symptoms of Aspergers Syndrome:

Signs and symptoms of Asperger's syndrome include:
*Engaging in one-sided, long-winded conversations, without noticing if the listener is listening or trying to change the subject
*Displaying unusual nonverbal communication, such as lack of eye contact, few facial expressions, or awkward body postures and gestures
*Showing an intense obsession with one or two specific, narrow subjects, such as baseball statistics, train schedules, weather or snakes
*Appearing not to understand, empathize with or be sensitive to others' feelings
*Having a hard time "reading" other people or understanding humor
*Speaking in a voice that is monotonous, rigid or unusually fast
*Moving clumsily, with poor coordination
*Having an odd posture or a rigid gait

Early Red Flags that may indicate Autism:

No big smiles or other warm, joyful expressions by six months or thereafter
No back-and-forth sharing of sounds, smiles, or other facial expressions by nine months or thereafter
No babbling by 12 months
No back-and-forth gestures, such as pointing, showing, reaching, or waving by 12 months
No words by 16 months
No two-word meaningful phrases (without imitating or repeating) by 24 months
Any loss of speech or babbling or social skills at any age.

Early intervention is important, it is no longer acceptable to just ignore these symptoms and see if the child grows out of it, they may, but what if they don't? Then you have lost precious months and years of intervention, if your baby shows any of these red flags you should see your pediatrician for an evaluation.

"A" at 18 months old. He started talking in full sentences well before his first birthday, he could sing Amazing Grace all the way through when he was 15 months old.

Bright lights are painful for "A" sunglasses are a must on a sunny day.

"A" can often be seen playing "beside" other children, without actually interacting with them. This type of play is more typical of young toddlers.

Meltdowns and Medication

2010-10-22T10:25:00.004-04:00

Hello everyone, I am enjoying this lovely fall weather. But not looking forward to winter. The doctor started A on medication again a couple of weeks ago. We are pretty much having the same issues we had last time. It works at first, then he starts having more meltdowns and becomes really emotional. It seems to work at school, I think it wears off in the afternoon and makes him a zombie the rest of the time. I am not against medication, especially for older children who really need it to concentrate and learn. I do worry about long term side effects. I have made the decision to wean A off of this medication once again. I'm sorry if he is a little more hyper at school without it. I don't like to give a child something that erases their personality, and he is so very sensitive to this type of thing.
I have finally found some services geared toward autism in this area...I will post more about that as soon as A attends his first appointment. I am excited about this opportunity!

Monday Mayhem

2010-10-18T11:13:00.002-04:00

Welcome to Monday Mayhem- the happenin' Monday Place to be.Today's we are playing a modification of a tag- the 8's tag. By 'modifications' we mean we edited out some of the questions we never want to see again.Have fun!

1. Are you living the dream??
Maybe a twisted version of it!

2.Is this what you imagined your life would be like?
Honestly, No. But, whose life turns out exactly like they imagined. If I were living the life that I imagined as a young girl then I would have prince charming, a million dollars, and a maid!

3. I'm coming for dinner, what will you make for me??
I hope you like chicken nuggets!

4. What's your favorite cuss word? I don't have a favorite cuss word!
A. does though, thanks to someone near and dear to me who I won't mention, his favorite cuss word starts wit a D and ends with a N!

5. Tell me one thing you would change about anyone's blog and why?
I really don't know of anything I would change, a blog is like a journal, so whatever!

6.What is your biggest blogging pet peeve?
People who don't comment and don't follow...come on I'll follow you if you follow me!

7.What's your favorite tv show this season? I need a new show! :)
This is crazy, I am 34 years old and I am really hooked on that show, Teen Mom!

8. What's your favorite 'down' time {nothing computer related}? Downtime, what is that....I gues when I get it, it is reading, I love a good book!

Your son has Autism??

2010-10-18T09:51:00.004-04:00

A lot of people don't know my son has autism, a lot of people know, but don't believe it. A. isn't what most people typically think of when they think of autism. This makes it difficult for us to get the services he needs to be successful. The school constantly denies A. the rights to the accommodations he needs for success.

Because A. does not exhibit the signs of classic autism does not mean that he doesn't struggle. He does struggle, he is extremely smart, but he has a hard time learning because his sensory system is so overwhelmed. Everyday things like bright lights, sunlight, and even the texture of his clothes are very distracting to him. He can hold intense conversations with adults and he loves older children, but somehow approaching children his own age is hard for him. He will say "mommy go ask them to play with me."

He has good days and bad days. On the good days I will forget about the Autism diagnosis. On the bad days, the days when it takes 30 minutes to get from the door to the car, when I am chasing A. around the school, with a two year old on my hip, everyone staring at me trying my best to keep my son from dashing out in the road, A. oblivious to my shouts and warnings of danger.....well on those days I remember.

To learn more about High Functioning Autism check out this article.

Am I wrong??

2010-10-03T21:20:00.005-04:00

Okay, so stress is a major part of my life. I should be used to it by now, but I am only human!

Today I was at Wal-Mart with my boy's. Alex has been a sensory mess for a couple of weeks now so I should have known better. But.....I desperately needed a few items so I loaded the kids up and went.

Things started going downhill almost immediately,

A. didn't want to hold my hand, so he bolted in the parking lot.
A. didn't want to ride in the cart, he wanted to walk, so I made him ride in the cart.
A. wanted to wait on the bench outside of the restroom, I made him go in with me, so he waited until I was in the stall, OPENED the stall door, and bolted out of the bathroom, while I followed him as I hiked up my pants! What a lovely scene for everyone in the bathroom!

So is it any wonder that as we were leaving the bathroom with A. in the back of the cart, screaming to the top of his lungs and totally melting down, I noticed a couple of ladies staring.

Now this is not so unusual for us, we get this a lot. But, at this particular moment I was way past my breaking point and on the verge of a meltdown myself! I looked right at the two ladies, now usually if I make eye contact that is enough to make nosy people turn away, but no, these ladies were whispering, giving me evil looks and one of them even smirked at me! So I simply looked them right in their faces and said "what is your problem, haven't you ever seen a kid with autism in the store before?" And then I walked off, A. never let off of his screaming through this whole ordeal.

So did I do wrong? I just am so tired of being made to feel like I am a horrible mother because my child throws tantrums in Wal-Mart. SO WHAT! Get over it people!

It must be the weather!

2010-09-29T21:06:00.004-04:00

Wow, A. had been a sensory mess for the past few days. At home and at school. I wonder if it is the change in the weather? You know how you hear teachers say that all of the kids are wild before a snowstorm? I am beginning to believe they are on to something. Recently our weather went from 90 degrees in the shade to the low 60's. Alex's sensory system, which had been improving, went haywire! He has stopped sleeping, is easily distracted won't listen, bounces off the walls, harasses the pets, rolls around in the floor, and is smelling EVERYTHING! So maybe it is the change in the weather, or maybe it's a full moon!

Recently our town had it's annual festival. A. did a finger painting for the festival, and he got a first place ribbon! I'm so proud of my little artist!

Autism Blog Hop

2010-09-24T10:25:00.004-04:00

Find more blogs about AUTISM

Our meeting

2010-09-23T09:17:00.003-04:00

Hi, everyone. Well the "child study" meeting with the school went better than expected. They have agreed to evaluate A, but we are still not getting the OT or behavior evaluation. I guess we will see how things go from here!

School is going fairly well for A. He has good days and bad days. He still has trouble napping and he needs a lot of help with fine motor activities. He is so smart though! I know he will be just fine, some of the most brilliant people in the world have had to struggle a bit, look at Einstein and Mozart, both thought to have had Autism!

Wordless Wednesday

2010-09-22T09:44:00.002-04:00

See more pictures or link up....

School Meeting

2010-09-18T23:57:00.005-04:00

Hello everyone. Well I have a meeting with Alex's school Monday morning. A child study meeting. I have been trying to get a IEP for Alex for over a year. I hope and pray that we are getting closer. Alex does well in school, but his sensory needs are causing him to have some problems with behavior and he needs OT for writing and cutting (important pre-kindergarten skills)! He gets private OT, Speech, and PT, but I have to pull him out of school to get him there, which is ridiculous! I have bought books and I am going to learn as much as possible about special education law, I am also taking classes!

Eating dinner!

My little artist, he loves to finger paint, but is not crazy about the mess :)

Weekend Blog Hop

2010-09-18T12:12:00.000-04:00

Tuesday Blog Hop

2010-09-14T13:17:00.002-04:00

I am supposed to be doing homework but my sister over at Life of This SAHM says I don't do enough blog hopping! If you visit please leave a comment and follow me, so I can follow you back!

Excuse my mess...

2010-09-11T17:03:00.002-04:00

Please excuse the appearance of my blog, I have been "trying" to work on it!

Denise

Weekend Wind Down Blog Hop- Fav Holiday

2010-09-11T16:57:00.001-04:00

This week's question:With Labor Day weekend just passing, what is your favorite holiday and why?

My favorite holiday is Christmas! I know that is probably what everyone says, but I love Christmas. Time with the family, the lights and decorations, the joy on my children's faces. I am excited because this year Elijah is old enough to understand more about what is going on! And last but definitely not least Christmas is the celebration of my Saviour, Jesus Christ!

Summer Fun...

2010-07-09T22:21:00.000-04:00

A. is doing well, ups and downs. He is in a summer program with his baby brother and he seems to enjoy it. He is such a smart, talented, child. I think his main problem is going to be social skills, he loves the company of adults and older children, but he seems to have trouble approaching children his own age.

Swimming on a recent vacation, he hates the big pool, but loves shallow water...

A. will be starting pre-k next year, I hope this will help with social skills! :)

Last day of school....

2010-05-31T19:32:00.004-04:00

It seems like just yesterday Alex was starting school.....

He was a little nervous and not sure what was going on....

Now on his last day of school...

He has built confidence....

And made great progress....

I'm so proud of my big boy!

Happy Birthday Alex!

2010-05-24T22:38:00.002-04:00

It is so hard to believe it has been four years!

Wordless Wednesday

2010-05-12T10:22:00.001-04:00

Not Me Monday

2010-05-10T17:20:00.000-04:00

I am participating in Not me Monday, okay here we go

I didn't catch Alex walking the dog, by his tail, I mean literally pulling a 50 lb dog by his tail, Not Alex! :)

I didn't then put the dog in his crate because Alex just wouldn't leave him alone, therefore putting the dog into "doggy timeout" because of Alex, not me!
I would never be late for church because I had to run into the grocery store at the last minute for my mom's Mothers Day gift, not me!

No More Medication....

2010-05-10T17:02:00.003-04:00

Alex is no longer on the meds, so far he's doing good! Fingers crossed! :)

What to do???

2010-05-03T14:54:00.001-04:00

My big question of the day is, Headstart or Pre-k. I'm really trying to decide what would be the best option for Alex. Pre-k is more academic so the teachers would expect a lot more out of him. A couple of his therapists have suggested putting Alex in Headstart this year and pre-k next year and then starting him in Kindergarten a year late. I'm just not sure what to do? Anyone have any suggestions?

Clean house.....

2010-04-26T12:28:00.001-04:00

whats that? I think I am going to give up on that dream. I spend so much time worrying about keeping my house clean because so many people come through here. I have been trying to paint for over a month now and it's just not happening. I am to the point that I don't care what people think anymore, I mean try chasing a very hyper four year old, taking care of a two year old who still needs lots of medical care, and not to mention a 9 month old lab and a husband! LOL, it is a miracle that my house is still standing!

I know I have really slacked on this blog, I am going to try to pick it back up.

Alex is doing well. We were promised a reevaluation by the school in Feb. but have heard nothing yet. I did take Alex for a pre-k evaluation and am praying he gets in. He is also on the list for Head Start next year. I do know that he needs some sort of structured program. Well I guess I'll go, I'll leave you with our most recent pictures!

Update....

2010-03-26T10:16:00.000-04:00

I'm sorry I haven't posted in a while. We have been so busy, my husband and I have decided to see if we can work things out, I think it will be better for the kids that way. So that means that we have moved back home, Alex is adjusting well. He is really doing good, the medications for ADHD and the Prozac for the compulsions really helps. He still has meltdowns and bad days at school, but not near as much. I was so scared of medication but it is amazing how it can make a difference. Alex is such a bright little boy! Occasionally I will notice him retreating into his own little world and it sort of scares me a little. He has a appointment with his developmental doctor next week. The school situation is at a complete standstill and I'm pretty disgusted with it right now, so I won't say no more about that!

I am planing on taking more pics soon and will post some on here!
Baby brothers surgery went well and he is doing great! :)

Cabin Fever

2010-02-17T12:33:00.000-05:00

We have been home all month. The kids have missed 16 days of school and counting. I know that alot of people are used to ALOT of snow, after all it is winter time right? Well I haven't seen a winter like this since I was a child. I'm longing for a winter like last winter. A couple of cold snaps and just enough snow to get everyone a little break from school. I don't like to complain, but cabin fever is really setting in. It snows and snows and snows, then you get a break of a day or so, get your hopes up and the next system rolls in.
Alex is handeling it well, he is used to being home now, he will occasionally ask where all the "kids" are.

This weather is wreaking havoc on me, I have gained ten pounds in like a month. Weight has always been something that I struggle with! I try all of the things that use to work for me and nothing works, I can't lose a pound. It seems like my metabolism has shut down since the birth of my triplets. I don't know what to do short of not eating at all. I guess I'm going to have to quit buying so much junk at the grocery store. I know it isn't healthy for any of us but when your child goes two days without eating then you will give him anything, even if it is a bowl of cheesies!

Well guess I'll quit rambling, there isn't much to report. The school has agreed to evaluate Alex once more, though their observations will find him medicated, therefore well behaved, so the findings will probably be the same....

Just Hanging Out At Home

2010-01-29T20:47:00.000-05:00

Snacking.....

Baby brother after Alex "painted" him (and the whole room) with a bottle of baby powder.....

My sweet, precious, little man (pay no mind to his dirty face), LOL!

Just the guys.....

Pictures and Update

2010-01-21T14:52:00.000-05:00

My sweet little sleepyhead!

Brotherly Love

The visual schedule I made for preschool...

Well things are still pretty challenging, Alex is getting into his brother's playpen alot less. I just seems like his behaviors at home and at school are getting more difficult to manage. Alex really need's public school services, as much as I hate to do it I have spoke with a attorney who has agreed to assist me in the next step, which is request a independent evaluation at the schools expense.

They can tell me that my son is not "autistic" enough for services, but I will tell you what I have to say to that "as long as there is one child in the school recieving services that has similar symptoms to my son, then they have no right denying him services". I know that alot of people are going to dislike me for pushing for services like this but I am beyond caring who I make mad, and I can care less if they don't like me, as long as they help my son. I want more for him then just getting by, I want him to do whatever it is he dreams about. Yes I am aware it will be more difficult for him, but I have faith in him and faith in God that he will excell, and that he will learn to deal with his condition and lead a full life. I know it is possible and I know it can be done! I want this for all of my children. I have two children with special needs and there is no doubt in my mind that God has very special plans for them, but I also believe that God gave these gifts to me with expectations, I believe I am supposed to be their advocates in a very difficult world, a world that is still not very accepting of someone different, a world more worried about expense then the life of a child.

So, there is no doubt about it, I WILL fight for them! So bring it on!

Up's and Down's

2010-01-16T12:43:00.000-05:00

Hello everyone, things are pretty much the same. We have are good days and bad days, or should I say are good minutes and bad minutes? One minute Alex is sitting on the floor playing with his toy's so nicely, so I slip out to go to the bathroom and return to find this.....

Alex pulling his brother's hair

or this.....

Alex was sitting there with the whole pack of cookies!

What's a mom to do.......

Just smile and count her blessings I guess!

And what sweet blessings they are!

Support Group and medication change...

2010-01-11T21:37:00.000-05:00

Hello everyone. I wanted to mention that I attended a parent support group yesterday. It was great to be around people who actually know what my life is like! I hope to be able to attend this group every month! Due to some problems Alex is no longer taking the Ritalin, I breathed a sigh of relief but my relief didn't last to long as I found out Alex is to be started on yet another medication. This one for Compulsive behavior! The doctor assured me that this was not a long term fix and when he gets a little older he will be able to attend behavioral therapy. I may be able to get some at home behaviour therapy now, it would be really helpful to have a therapist tell me what I'm doing wrong, I'm sure it is alot! Well I guess I'll go.

I'm so exhausted right now, I have a exam tommorrow which I am in no way prepared for. I will leave you with another old picture, but guess what! I bought a new disc for my camera so hopefully I'll have some recent pictures soon!

Medication :(

2010-01-09T21:36:00.000-05:00

Alex at the Library

We have had a interesting week. Alex's behavior has excalated to the point that I worry about him hurting his baby brother by accident, and poor Alex has pretty much stopped sleeping. So I finally made a call to his Developmental Specialist. She suggested Melatonin for his sleeping issues and Ritalin. I really DID NOT want to put my son on medication. I know it can help, I have seen it help many children, especially in school. But, I agreed to try it for a while. I can't even leave the room to go to the bathroom without Alex climbing in on the baby. He even gets up during the night and climbs in his crib. I thought it was some sort of obsession but the doctor seems to think it is impulsive behavior. We started a real low dose of Ritalin this morning and it seemed to work for a few hours, but overall Alex's behavior was better today, and he wasn't a zombie, that was one of my BIG worries! I will try this for awhile, but I hope we don't have to do it long term or maybe we can switch to something else. Alex is so young and Ritalin has some long term side effects I don't like. I really hope things are better when we can get back on his schedule. The winter weather has all of us thrown off!

As for the Meletonin it is a vitamin and I can't believe how well it works. Alex goes to sleep about a hour after taking it and last night he slept through the night. Medication makes me nervous though. I have always been sort of against it. When I started working with kids though and saw how life changing it could be I sort of warmed up to the idea, but that was not my child. As you can tell I feel so guilty, so please don't leave any nasty comments, if you can't say anything nice, kindly keep it to yourself! :)

Funny, funny, funny...

2010-01-06T23:03:00.000-05:00

I know I just posted but I forgot to tell you something funny Alex said to me tonight. I had just put him to bed and he was a little upset with me (he can't understand why he can't ~~kill his baby brother~~ play in his brothers playpen)! So when I was tucking him in here is how it went:

Me: Goodnight, I love you.
Alex: I'm going to build me a New Mommy, a robot mommy.
Me: Poor mommy what are you going to do with me?
Alex: The Robot Mommy is going to put you in the trash!

I didn't know what to say, how does a three year old think this stuff up???

Thats my little angel! LOL!

Alex and his big brother at a local Christmas Parade....

The Stop sign.....

2010-01-06T22:51:00.000-05:00

DIDN'T WORK! Alex continues to crawl into his brothers playpen or crib any chance he gets! It is hard for me to leave the room for a second! It wouldn't be so bad but Alex just bounces all over his brother and will even walk on him! I'm so afraid the baby is going to be hurt. Does anyone have any ideas? He has a new tent that he got for Christmas and it worked for a while but it seems like he is almost obsessed with being right with (and rolling all over) his brother. Is this another sensory thing. I don't know what to do. School has been out again because of snow. I have also noticed that any change in the weather makes Alex WILD!!

Just stuff....

2009-12-30T11:16:00.000-05:00

Well vacation is almost over. I'm sure Alex will be glad to get back to his school routine. He has been a bundle of energy. His poor baby brother doesn't get a moments rest! Alex's big thing is that he wants to be in his brothers playpen or crib. Today the speech therapist gave me a great idea, put a stop sign on the playpen, so far it's worked. I'm keeping my fingers crossed! I still don't have my camera so I will post yet another older picture! :)

Halloween 2008

Spring 2008

We survived Christmas!

2009-12-28T12:48:00.000-05:00

Well we made it through Christmas, it's the aftermath that has almost killed me! Alex has been full of energy the last few days. I can't keep him off of his baby brother. He crawls in the playpen with him, so I move the baby to the crib, then of course Alex is in the crib! I am also having a increasingly hard time getting Alex to go to bed, and stay there! I am thinking about trying vitamins to see if that will work!

I promise to post some Christmas pictures soon, I was unable to take any pictures with my camera because my litle man has done away with essential parts of my camera, imagine that! So right now I'll leave you with a picture from "last" Christmas!

A poem by me and the word of the week....

2009-12-24T09:04:00.001-05:00

Dear Santa,

I’m making this list for my son, he’s only three. I’ve compiled a few ideas, actually needs.

His diagnosis was recently received,

High Functioning Autism is what they say,

I set out with big plans; sure plenty of help was on the way.

The school people rolled their eyes, he don’t meet our "criteria" was what they said, and what’s the problem, he can talk, we saw him play, when we observed him for an hour that day.

So Santa here are a few gifts I’m sure he would agree, that would help with some of those non-existent needs,

Some Melatonin would be great, sleeps become short of late

A weighted blanket for his little knees, when he can’t sit still to say his ABC’s

How about a little tent, I’m sure he would be content.

And I haven’t had time to make; the visual schedule they all say would be so great.

I’m sorry to bug you but just a few things more

A social story wouldn’t be much of a bore.

And Santa when you visit could you please, give others a dose of compassion for me?

When they see my son kicking and screaming on the floor,

I’m not a bad mom; I do my best you see.

You will love my son, he’s cute and he’s smart,

Autism is not who he is, it is just a very special part!

Denise Privett

Merry Christmas everyone! I hope you all have a blessed and happy Christmas! Alex don't seem very excited about Christmas. I talk about it but he sort of just does his own thing, imagine that!
Yesterday we had to take his brother back to the doctor, while we were in the waiting area I had the chance to observe him with some kids that were "strange" to him. At first he held back and wouldn't have much to do with them, even though I could tell that he was wanting to play at the little sand table. He sat next to me and informed me (very loudly), "mommy that is a stupid kid, that boy, he's just absolutely stupid". Of course I told Alex that it wasn't very nice to say that, which led to him saying it several more times. Then while we were seeing the doctor Alex walked up to me and pointed to his baby brother saying "that is a stupid baby". I guess stupid is his word for the week, but pretty embarrassing! People look at me like "what are you teaching that kid"! That's not as bad as the looks I get during his meltdowns, I either get those looks that accuse me of doing something to him or more often the looks of "if that were my child, my kid didn't act like that, control that child" if only they knew! I really need to make Alex some social stories I guess!

Since he is on Christmas break from Head Start he is off of his schedule, so life is interesting right now to say the least!

My first post...

2009-12-23T18:16:00.000-05:00

Alex at 2 in Tampa Florida

Hello to everyone that I hope will soon be enjoying my rambling thoughts. I decided to start a blog about Autism. In the past couple of months my three year old son has been diagnosed with High Functioning Autism, denied desperately needed school services, and began private therapy for language and O.T. It has been a roller coaster but I expected it to be. Now I sit here and write this and wonder what the next step in the battle will be, because yes I consider this a battle. Why should my son be denied a IEP, when he so obviously needs the help, so I guess my next step is to fight, though I can't say I'm looking forward to it!

I guess I'll tell you more about Alex and the events leading up to his Autism diagnosis. Almost two years ago I was pregnant with triplets, to make a long story short I developed TTTS, lost two of my triplets and delivered a extremely premature infant, Elijah (read his story here). During all of this Alex turned two at a Tampa Florida Ronald Mcdonald House 12 hours away from home. I decided after our second month there that I would take Alex home to be with my parents. I stayed a week with him and flew back to Florida. During this week I took Alex for his 2 year checkup and he finally had his MMR vaccine. Now I'm not saying that this vaccine causes Autism and I'm not saying that it doesn't, I really don't know.
The first odd thing we noticed with Alex was that suddenly he couldn't tolerate bright light. My mom noticed this, and he had his first big meltdown on her at Wal-Mart. After I returned home from Tampa we had Alex's eyes checked, the doc said he couldn't find anything wrong.
During the next few months we were pretty much prisoners of our own home due to the baby's RSV risk, when we finally ventured out during the spring I started noticing small things. Like the fact that Alex was turning into a sensory basket case, that he didn't eat certain textures, and when I started taking him to the library reading group I noticed he avoided other children, acting almost afraid of them. During one of these library visits the group made cute little aprons, when it came time for the children to put them on and have pictures made Alex refused, he just didn't like the way the apron felt. After this I mentioned the behaviours to his doctor, and here we are.

I will write later about what has happened to us since the diagnosis. Including the reason Alex was denied services and the IEP meeting from H__! The one where I was reduced to tears because perfect strangers who had observed my son once for about a hour were trying to tell me that they knew more about him then I did, yes I'll save all that for later because I have to run! You know how it is....